Wednesday, November 4, 2009

Halloween and Dreams

I just had to share how cute Kevin was during Halloween. A few years ago I was hoping he would be able to say 'Trick or Treat' and it was more like 'tri-o-tre'. This year, Kevin literally talked to each neighbor for about 5 minutes and I had to finally say, 'Ok Kevin, say good-bye'. He was having full conversations about costumes or decorations or whatever he decided to talk about. Plus, he didn't need me to translate for him. Everyone understood what he was saying. It was so special! Our friends who went out with us asked if he was always this talkative. I had to reply.... 'Yes, ALWAYS!'!!! Hooray!

Last night, Kevin woke up and came to our room in the middle of the night. He said (without his CIs) 'The helicopter above my head in my room is too loud' and he crawled in our bed. He was dreaming in sound!!! This might not seem out of the ordinary for a hearing child, but I always wondered if he would dream in sound. He let me know 'loud and clear' last night that, yes, he does!!! I just think that is soooo cool!

Sunday, October 11, 2009

Super Agent Oso

Daddy is brushing his teeth this morning.
Enter Kevin bouncing in.
Kevin: (talking rapid fire fast) Daddy, I am Special Agent Oso and you have to turn off the water when you are brushing your teeth. You are wasting water and it is all going down the drain and we are going to run out. I learned this on Special Agent Oso.
Daddy: (turning off water) Thank you Special Agent Oso. I'm glad you taught me this.
Mommy: (turning head so that Kevin doesn't see her laugh hysterically as tears stream down).

Moments like this are priceless to us. This is from our child who wasn't supposed to ever utter a word, let alone hear cartoon characters teach lessons!

Tuesday, September 29, 2009

Who says CI kids can't appreciate music!

While Kevin amazes me everyday with things he says, it has been a little while since I have been brought to tears by a 'CI Moment'. Today, it happened again. What a wonderful feeling!

We were driving on the way home from swim practice and there was a lull in our conversation. I had the Vacation Bible School cd on in the car and while it was going in one ear and out the other for me, I guess Kevin was actually listening to it. I remember thinking that I didn't get what the line was in the song and all of a sudden, Kevin sang 'You pray with your heart' in a little melody voice. I stopped and asked what he just said, and he said it again. He said that they learned that at Sunday School and he heard it on the song. Amazing....! Yes, this is truly God at work! Thank you!!! He heard the phrase in the song and actually sang it back. Truly amazing...!

Kevin got mapped a few weeks ago and I forgot to post his fabulous results from that trip. He continues to hear well in both ears, but the exciting news came from the tests that they performed. Last mapping, in March, they did the HINT-c test using voice and he scored in the mid-90s for both ears. They were floored by that. So, this time they decided to do the HINT-c test using a recorded CD and he scored 96% in each ear. Yes, you heard that correctly! He is only 3.5 years old!!! Cochlear Implants and Kevin never cease to amaze me!

I'm a happy Mom!

Tuesday, September 15, 2009

Good-bye Annie

We just found out that Kevin's beloved audiologist is leaving for another job. Tomorrow will be Kevin's last mapping appt. with her. I am soooo sad about this! I have felt this enormous safety net under Kevin for the past 2.5 years because of his awesome team of surgeon, audi, and speech teacher. I am just a little shaken about how this will affect Kevin and how long it will take to regain the trust of a new audiologist. I guess I will have to start the interviewing process of a new audi now. At least we have 6 months until his next mapping. Good-bye Annie... you will be missed deeply! Good luck with your new endeavor!

Kevin continues to do awesome with both his hearing and talking. He is in a mixed age class (3 -5 year olds) in both his mainstream and auditory-oral preschools. It is crazy how well he is doing! My little jokester has also settled down and pays attention really well. He talks about everything he is learning and sings new songs all of the time. It is really fun to see how much he is blossoming!

Have I mentioned that Kevin is a fish? He swims so well that is blows my mind! He is only 3.5 years old and he is already taking side-breath strokes. Wouldn't it be ironic if my deaf child chooses a sport where he isn't supposed to wear his CI? Of course, I used the Aloksak bag and it works great, but still it would be ironic. I can't wait for the new Cochlear processor to test exactly how waterproof it is! :)

I also want to mention something that happened to us the other night. This was a first for me and it made me kind of sad. We were at a fun pizza place having dinner and happened to sit at a table next to 4 deaf adults. As soon as Kevin walked in, they made awful faces and started signing really fast to each other showing their disapproval of his CIs. Now, I don't know sign, so I don't know exactly what they were saying, but I can read facial and body language and they were not pleased in the slightest and not afraid to show it. They went on about his CI for about a 1/2 hour. I thought how sad that we totally ruined their dinner. I also realized that one day Kevin wouldn't be oblivious to this kind of hatred and I wonder how he will handle it. This was really the first time that I have encountered this first-hand. I wish I could have had a conversation with this about this, but I don't know sign language... I guess that is their point. Interesting dilemma...

Thursday, August 20, 2009

Mainstream Preschool

Well, Kevin has adjusted well to his mainstream preschool this week. He loves it and is doing so great! This is the same school as his brother went to, so I expected him to like it, but he really LOVES it! He is so proud that he gets to go to his own school now. I guess he doesn't consider his auditory-oral school a big boy school. I think he understands that this is different because he is the only CI kid here. There are only 12 kids there and so far, he is hearing and understanding what is being said. He came home singing a new song that they learned today. I was very impressed because that tells me that he is really hearing and understanding what is being said.

I gave a little presentation today to the class about cochlear implants and gave out some coloring books to the kids on CIs. They enjoyed holding a CI and trying to put it on their head. Kevin all of a sudden said, 'See, when I pull my ears off (and took his coils off) I can't hear you. (then he put them back on again) And now I can!'. It was really cute!

I am just so proud of him and how much he has accomplished. My other son started Kindergarten this week and I am already taking notes about things that will be difficult for Kevin in a large school. At least we have 2 more years to work even more on his hearing!

Tuesday, August 11, 2009

I think I decided to take the Summer off of blogging since Kevin took the Summer off of his therapy schedule. So much to report since it has been 3 months...

IEP update: Well, the IEP process ended up being a very positive experience once we got the right people involved. Kevin will be attending the local auditory-oral school for preschool and speech twice a week and will also go to mainstream preschool twice a week. While I don't like the idea of him going to school 4 days a week at 3 years old, I am thrilled that this is what his schedule will be. My son will be mainstreaming next week! I always knew he would have the opportunity to do it, I just didn't know when it would be. 3 years old and he is already talking better than most 3 year olds. I think he will do fine in his class. We'll see next week!

He attended an art class this Summer for 1.5 hours a week and did great. I always asked the teacher if he seemed to hear him or just follow along with what the other kids were doing. The room is noisy and there are a bunch of kids in there all working on art. He told me that Kevin definitely does hear him, but doesn't always listen to him. Yes... that is the Kevin I know. He is very 3 and only 'listens' when he wants to, but he definitely hears me! I'm glad his teacher thought so as well!!!

Kevin talks in full paragraphs and processes information very well. An example of his understanding is I read him Green Eggs and Ham about 2 months ago. A couple of weeks ago, he didn't want to try some food, but I was trying to get him to try it. He finally did and said, 'Hey, I like it!' And then he said, 'Sam I am'. I almost split my seam!!! Yes, Kevin gets it just fine.

He and his brother are best friends right now. I wish I could freeze frame this point in our life. The two boys get along great, play all the time and talk to each other all the time. Sometimes I stop and think about how different our life would be if Kevin didn't wear cochlear implants. These devices have allowed our family to continue living in the hearing world and allow the boys to play together like all the other siblings I know. I would do everything again in a heartbeat!

I hope I can update more regularly!!!

Sunday, May 3, 2009

Kevin talking

I just thought I would share a video of Kevin talking. This is actually taken this evening of both boys just playing around the yard. One point to mention is that Kevin is just running and playing throughout the video and doesn't ever look at us. He has grown up relying on his implants as his ears and not using his eyes to lip read.
http://www.youtube.com/watch?v=2-hzwIdbj70